
Lori Leibovich
interviews author and psychiatrist E. Fuller Torrey
in January of 1997 after he published his book Out of the
Shadows: Confronting America's Mental Illness Crisis.
Lori Leibovich: Emptying America's
mental hospitals -- "snake pits," many people called them--
and moving towards "community care" was supposed to be a
sign of progress. But you say deinstitutionalization has
failed. Why?
Dr. Torrey:
It hasn't failed completely. There are lots of folks – about
50 percent of the mentally ill population -- who have done
reasonably well since leaving the hospital, especially those
who have insight into their illness and who recognize they
need medication.
Take my sister, for example. She has had
schizophrenia for 30 years. She was in a state hospital for
25 years continuously. She is now living in a group home
where the quality of her life is substantially better than
it was -- she can visit with her boyfriend in the evenings,
go out to dinner. She is an example of someone who would
still be in a state hospital if it weren't for
deinstitutionalization.
The problem is with the other 50
percent who do not have insight into their illness. They
often stop taking their medications as soon as they walk out
the hospital door. These are the
people who end up on the streets, in jail or committing
violent acts. We have no mechanism to get these people back
on medication.
Lori Leibovich:
And for these people, you favor a return to
involuntary hospitalization and forced treatment?
Dr. Torrey:
Yes. Consider the issue of Alzheimer's disease. If Mrs.
Jones with Alzheimer's wants to wander around outside
without shoes and socks on in the middle of winter, we don't
say, "OK, you have a right to do that," because that would
be inhumane. And we don't have much problem taking someone
with Alzheimer's disease and putting them on a locked ward
saying, "Yes, you can go outside, but you're going to have
to go with someone so you can find your way back." In that
case, people don't say you are infringing on the patient's
civil liberties.
But in the case of the mentally ill, we
say we are infringing on their liberties, thanks to the
civil liberties movement, which adopted the mentally ill as
one of their causes back in the 1960s. Civil liberties
lawyers have been very successful in changing the laws in
many of the states, making it very difficult to keep the
mentally ill safe and sound, inside.
I see mentally ill women all the time who
have been raped on the streets. Civil libertarians say they
don't like these women getting hurt but if they don't want
to go to the hospital then they have a right to stay on the
street.
Lori Leibovich:
So you would put them away, no questions
asked?
Dr. Torrey: I
propose a model similar to the one Ed Koch had in New York
when he was mayor: When there is someone who is obviously
mentally disabled and living on the street, we have the
right to pick them up and put them in the hospital for 30
days, try them on medication and see if they respond. Then
an evaluation would be done.
I don't say we should have the right to do
this on a doctor's signature alone. No one wants to go back
to the 1930s. The mentally ill person should definitely have
his day in court and be able to appeal these decisions. But
ultimately we should have a mechanism to involuntarily treat
people who have brain disorders, who have no insight into
their illness, and are are clearly a danger to self or
others.
Lori Leibovich:
Is "having their day in court" sufficient protection for
those involuntarily committed?
Dr. Torrey:
In terms of checks and balances, I would involve public
defenders on this. If you have a well-run system where there
are unannounced inspections, it is possible to measure
quality of life on the wards and in outpatient systems. We
haven't done this very well.
Lori Leibovich:
Let's say we accepted involuntary commitment.
Would there be room in state facilities for all of them?
Dr. Torrey:
No. That's why the state hospitals will never push this,
because it would mean they would have to reopen some of
those hospital beds, which would mean putting more money
back into the system. When a state closes one of their
hospitals, they have then shifted the cost to Washington. So
when you ask them, "Wouldn't you like to open three more
wards to take on these people?" they look at you like you
are crazy. The states save money by discharging people. They
don't save money by providing care for them.
Lori Leibovich:
You call the treatment of the mentally ill a
"disgrace." But with new medications, new technologies and
an increased understanding of the brain, shouldn't our
treatment of the mentally ill be advancing?
Dr. Torrey:
Yes. It should be. There are hosts of new anti-psychotic
drugs that are very effective, but they can cost $6,000 to
$10,000 a year. I run a clinic for homeless mentally ill
people, and by begging the drug companies I have gotten
these medications for two of my clients, but it was
enormously complicated. I see people all the time who should
have access to these medications, but they don't.
Lori Leibovich:
Is that why so many mentally ill people --
2.2 million by your estimate -- are left untreated?
Dr. Torrey:
Cost is one of the reasons. The single largest issue is the
insight issue. The majority of people wouldn't take the
medication even if you offered it them. Because they don't
think there is anything wrong with them.
Lori Leibovich:
And many of them are broke and homeless.
The homeless are the most visible evidence
of a failed system. Many of them are on the streets because
they were prematurely discharged from the state hospital.
Some of them don't even make it to a hospital because the
states closed so many beds. They are severely disabled, but
they are not receiving medication or outpatient treatment of
any kind.
By the way, the vast majority of
panhandlers are not schizophrenics, they are substance
abusers.
Lori Leibovich:
You say there are large numbers of prisoners
who are mentally ill.
Dr. Torrey:
In California, according to the numbers, about 20 percent of
those in the prison system are severely mentally ill. Being
in a prison or jail when your brain is working normally is
no bargain. Being in there when you are hallucinating is
living hell. In some states there are separate pods or
treatment facilities for the mentally ill. In fact, there
are a fair number of families who say they were unable to
get their loved one help until they got into the prison
system. That's a sad commentary on our system.
Lori Leibovich:
Tipper Gore and others have said mental
health insurance should be more widely available. But is
that likely in an era of managed care?
Dr. Torrey:
We can't blame what we are seeing on the streets today on
managed care. But it is definitely going to make things
worse. While now you only pass four homeless mentally ill
individuals on the way to the grocery store, five years from
now you are going to pass six.
Lori Leibovich:
Why can't managed care do a better job?
Dr. Torrey:
HMOs can provide excellent care for the severely mentally
ill, if they want to. There is nothing inherent in the HMO
model that dictates that you can't serve the mentally ill
well. The problem is with the for-profit model. When the
earnings of the top executives and the stock price of the
company are dependent on being able to save money there is
an enormous conflict of interest. People with severe mental
illness -- like people with other chronic brain disorders
like Parkinson's or multiple sclerosis -- are relatively
expensive to provide care for. In for-profit managed care,
it is not surprising that they are going to fall through the
cracks most quickly.
Lori Leibovich:
They don't like to pay for long-term therapy,
but they will pay for drugs.
Dr. Torrey: I
don't advocate expensive long-term treatments for everyone
who is unhappy. I differ from many of my colleagues who say
mental illness should be covered just like any other
physical illnesses. For example, people who have experienced
a death in the family or parents whose teenage son won't
talk to them, or the professor who doesn't get tenure --
these are all examples of what I call "problems of living."
But brain disorders like schizophrenia should be covered
equally. A major problem now with the coverage issue is the
reluctance of psychiatrists, psychologists and psychiatric
social workers to make that distinction.
Lori Leibovich:
Why?
Dr. Torrey:
Money. From the point of view of mental health providers, if
the insurance companies don't cover "problems of living,"
there would be an awful lot of therapists looking for other
jobs.
|